Note: As always, contact your healthcare practitioner before trying any new prevention or treatment options.Ī lot of the same things you may already do to manage your lupus may also help to manage headache pain and how often and intensely headaches occur. What can help to prevent and treat a pounding headache? The pain is real, however, no matter the cause. That is really what is most important in getting you the relief you need. It is ultimately up to you and your healthcare practitioner to decide what kind of headaches you suffer from. The Systemic Lupus Erythematosus Disease Activity Index (SLEDAI) defines lupus headache as a “severe, persistent headache that may be migrainous, but must be nonresponsive to narcotic analgesia.” Because some scientists are on the fence about whether or not lupus can directly cause headaches, it is estimated that between 24% – 72% of individuals with lupus may actually get lupus headaches. This kind of diagnosis, as with most involving lupus, requires careful physical exams, blood tests and perhaps even an MRI of the brain. While there is some debate in the medical community about whether lupus headaches are real, it is a condition that has been diagnosed if other considerations have been ruled out. Is there really such a thing as a “lupus headache?” It is imperative to immediately seek medical assistance if a headache comes on suddenly and the pain is debilitating, or comes on gradually and is associated with a high fever. About 20% of those with lupus experience migraine-like headaches that may not technically be migraines, but come with the same symptoms. Those with lupus often report having migraines or tension headaches – even both – as the most common types of headaches they experience. When to worry … secondary headaches, though rare, can cause excruciating pain as a result of: They can last from a few minutes to a couple of hours and may occur often throughout the day. They are typically one-sided and can cause a stuffy nose on one side, tearing, one eye may dilate and one lid may droop.
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